the diagnostic odyssey chronicles

Welcome to Rare Mama Bear, a blog about navigating the choppy waters of parenting a child with a rare disorder. This is also the portfolio site of Erin Prater, a public health journalist.

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  • Diagnostic Odyssey

    When I first read the phrase, I thought he was waxing poetic, striving to be both a doctor and a wordsmith — a Renaissance man of sorts.

    Read here

  • 6 Ways to Know You’re a Rare Disease Mom

    1. Someone likes your shirt? ‘Thanks,’ you say. ‘It’s from the hospital gift shop.’

    Read here
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collectively, rare diseases are common.

NEarly 1 in 10 americans has a rare disorder.

NATIONAL ORGANIZATION FOR RARE DISORDERS